This is now the 3rd time i have filled in this form, and yes its changed again for the 3rd time!!!!!
1st time i filled it in i got High care rate................ was working full time at that time
2nd time i filled it in i was told i was getting low care rate/ i appealed, then my high care rate was re-instated ..............was off sick, but still employed
Now,i am not working, got the" heave ho" but feeling so much worse( physically and mentally) than diagnosed date of 2006.

jenny
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If you`ve got the energy, Jenny, do think about appealing - it`s not right that have turned you down.

Take care,

Kathleen x

Hi Jenny,

Before you go down the appeal route, you can ask for a "review" of the decision. In a letter describe how your needs have changed or not since your last DLA decision.It would be good if you could get a letter from a specialist nurse or physiotherapist to support your letter. If the rules have not changed you are entitled to ask for a review of the decision within 14 days of receiving the letter.

I suspect that somewhere in the line of supporting evidence eg a doctor or nurse has failed send their part back or not evidenced your needs probably. You can also ask for a written copy of how they reached their decision.

Love,

Barbara
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I got high care rate dla when i first was diagnosed with rheumatoid Disease and PBC, i got it for 2 years, even though i was working full-time.
I then had to re apply in 2008, thats when they refused my high care rate, and offered me low care rate. I did appeal and i was then re-instated to high care rate.
I am now a lot worse than i was in 2006, just the nature of the beast i suppose.
The paperwork is changing all the time, so appart from my paranoia, what the heck do i write?
Its bloody well confusing me
Well done Private eye S B .
I am in the process of applying for 3rd time for dla. I have received dla high care rate for the past 4 yrs.
Just bothers me the fact that they need to change the forms all the time.

jenny
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hi jenny i have had problems with getting DLA as well, i applied in aug as i cant work now, i was told i didnt quilify, i appealed and now have to have someone come to the house to assess me help, , i keep thinking i should just forget it is it worth all this hassle, somedays im better than others, somedays i cant get out bed without pain killers, if they come in afternoon im more mobile that in the morning i would like to hear from anyone else would have had this, thanks sylvia

I've sent you a message Sylvia. Don't know if it will help. Just ask if I can help.

Eleanor x

Although I get high rate mobility, I get only middle for care, although I can't even go to the loo unaided! Mad, isn't it?

No, I don't believe that.......

I applied for DLA back in October and was approved for High rate mobility and middle rate care. I felt the process had gone very smoothly so I find it so frustrating that other people who are so very obviously in need have such a different experience. Is there no consistency at all!?!

What I did do before I started filling in my application was to list all my "complaints". I then noted how each complaint affected me and my life in detail. Lastly I noted how often each complaint arose and how long it lasted. I found the process really quite depressing but it gave me a very clear view of what I needed to get across on the forms and then I included the notes with my application. I don't know if it helped with the decision but it helped me fill out the form.

Good luck to everyone undergoing the process ... it's wrong that it should cause genuine claimants so much stress and anxiety!

Joanna

Wey hey, got my high care rate of DLA renewed for another 2 yrs.
Apparently i will need to re apply again in 2 yrs time in case the treatment may change the amount of help i need.

jenny
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